FMySCI - because spinal cord injury sucks. » Public ignorance

17-01-10(22:50:09)

Anonymous — Sun, 17 Jan 2010 22:54:54 +0000

Fuck being 24 and having to wear a legbag just so I can go out with friends to the bars that only occasionally ever have a bathroom I can actually get into. Fuck having to answer questions about “how it works” to girls. Fuck waking up in a pile of beer shits cause something I ate yesterday decided not to agree with me. Fuck people standing in the way and then having the audacity to tell me off when I nudged his shoulder asking him to move. FMySCI.

07-01-10(14:53:59)

Anonymous — Thu, 07 Jan 2010 21:02:46 +0000

Reconnected online with a girlfriend I haven’t seen in 15 years. Now to go through the “broke my neck” conversation and “here’s what works and doesn’t work.” FMySCI!

21-12-09(19:34:36)

Anonymous — Tue, 22 Dec 2009 12:10:19 +0000

I hate “pseudo disabled” people who are just fat, or lazy, that use up all the handicap parking spots. i hate that my city has the worst sidewalks and nothing is accessible. i hate being in pain every hour of every day. i hate cathing, and using “digital stimulation” to shit. I hate that everyone assumes you can piss and shit the same way you always did. I hate that random girls ask me if I can get “hard”, and they assume I can still cum. I hate that pre-sci my legs were my life ( a friend once asked me pre-sci, “what is one body part i couldnt live without” and i said, “i’d kill myself if i couldn’t walk”), and now, compared to everything else i have to live with, I wouldn’t mind being in a wheelchair if I didn’t have all these other issues. FMySCI.

11-12-09(11:53:34)

Anonymous — Fri, 11 Dec 2009 19:44:17 +0000

Had 2 weeks to go to outpatient rehab, be released from home health, so I could get to some weight bearing equipment under my belt, and I get my normal range of motion from my normal aide, and we have a loud snap!!! breaking my femur in my right leg, setting my recovery back another 3 months! I sat in the hospital for a week, and a half, with a bunch of nurses who knew nothing of spinal injuries, or bowel programs, or pressure relief for that matter, just to be released and sent home for the bone to heal on its own…….transferring is SSOO much better with a broken leg!! FMySCI!!

05-11-09(19:44:54)

Anonymous — Fri, 06 Nov 2009 14:26:44 +0000

I just got a call and got uninvited to a Lake of the Ozarks trip that I’ve gone on for about 4 or 5 years. I had my SCI last march and all of a sudden it’s too “hard” to be around me. It would make them nervous wrecks if they had to worry about me falling or not being able to get up the steps, etc.. into the lake house. So I get to see all of my friends go without me to the funnest thing that I’ve gotten to experience in my 46 years. FmySCI!!!!!

06-08-09(21:42:30)

Anonymous — Fri, 07 Aug 2009 13:46:37 +0000

FMySCI… I hate feeling hot then cold, chills and goosebumps… My body is never happy with the temperature. To make things worse, when I finally do cool after being too hot I have to pee suddenly, and pray that my cathing equipment is close by. Able-bodied people think all we have to worry about is not being able to walk. I wish.

FMySCI.

03-08-09(12:56:43)

Anonymous — Mon, 03 Aug 2009 19:22:33 +0000

For those Able bodied people who don’t get it and think this is a bunch of complaining or gross talking about accidents and all. I challenge you. Sit down in a chair at your sink. Try doing the dishes and brushing your teeth. Now get your office chair and try to vacuum. I challenge you to not say f*** this. And you were only a para for 10 minutes. Now imagine you couldn’t use your grip to hold your toothbrush to brush those teeth from that chair. FMySCI.

03-08-09(5:20:33)

Anonymous — Mon, 03 Aug 2009 11:58:08 +0000

I hate that my balance sucks and I do a great weeble impression. I hate the effort it takes to get back into my chair when I fall out. I hate the humiliation. I hate the pain, the feeling of a thousand electric shocks just as I am about to drop off to sleep. I hate that I haven’t had a good nights sleep for over 2 years. I hate that I can’t be spontaneous, everything I do must planned. I hate forward planning. I hate how much disability costs. I hate the pitying looks I get from people, the stares, the questions. I hate that I can no longer do the job I loved. I hate my bladder & my bowels, the time and effort spent on making sure they behave. I hate the frustration, that I still burst into tears over “stupid” things. FMySCI.

20-06-09(16:07:50)

Anonymous — Sat, 20 Jun 2009 20:55:16 +0000

F*** my SCI. I am soooo tired of living with it. People that patronize you constantly. Always having to ask for help. People that think you’re too picky because you like things the way you like them WTF. Living around a schedule of times your carers can come. I want my freedom and my life back! FMySCI.

18-06-09(19:59:46)

Anonymous — Fri, 19 Jun 2009 13:50:47 +0000

Swollen ankles and feet = not a lot of choices for shoes and cankles are just ugly.

I haven’t had an orgasm in 17 years, of course I’m cranky and bitter!

Bowel accidents are the worst. That and so many other things have led to more embarrassing, disgusting memories than I care to think about.

Ignorant, annoying, rude people can make life even more hellish on top of it.

And the fact that no two SCIs are alike isn’t helpful at all… really hard to compare notes, figure some things out.

I’m surprised all the time that I’m not more angry and miserable to be around than I am. Having an SCI has robbed me of so much in life. FMySCI!!!