FMySCI - because spinal cord injury sucks. » Physical Pain

03-08-09(5:20:33)

Anonymous — Mon, 03 Aug 2009 11:58:08 +0000

I hate that my balance sucks and I do a great weeble impression. I hate the effort it takes to get back into my chair when I fall out. I hate the humiliation. I hate the pain, the feeling of a thousand electric shocks just as I am about to drop off to sleep. I hate that I haven’t had a good nights sleep for over 2 years. I hate that I can’t be spontaneous, everything I do must planned. I hate forward planning. I hate how much disability costs. I hate the pitying looks I get from people, the stares, the questions. I hate that I can no longer do the job I loved. I hate my bladder & my bowels, the time and effort spent on making sure they behave. I hate the frustration, that I still burst into tears over “stupid” things. FMySCI.

04-07-09(15:35:31)

Anonymous — Sun, 05 Jul 2009 17:02:37 +0000

I am sick to death of worsening pains, paralysis, dependence, lack of balance, and all the other shit that goes with quadhood. It’s almost three decades of this crap. I want it to end. I pray every night to not wake up – I used to pray for improvement and better coping. FMySCI.

15-06-09(6:13:22)

Anonymous — Mon, 15 Jun 2009 14:05:18 +0000

I’m tired of my parents referring to me like I have a disease. My sisters never visit, because it’s torture for them to help me get into my chair. I’m sick of everyone saying I’m bitchy/picky/needy cuz’ I like things done a certain way. Pain. Every minute of every day, the pain never goes away. FMySCI.

I’m not living like this anymore. Started school, started therapy, started looking for a job… FMySCI!!!

Don’t let the turkeys get you down!!!

13-06-09(13:12:42)

Anonymous — Sat, 13 Jun 2009 17:30:51 +0000

Intractable chronic pain in my back and below my waist, but can’t really feel anything in my right leg or foot.

But my right foot is burning and feels like it is being shredded while numb!

Sliced it open once, didn’t know til I slipped and fell in the pool of blood.

FMySCI.

13-06-09(13:01:52)

Anonymous — Sat, 13 Jun 2009 17:12:31 +0000

I’ve been injured almost 5 years. Pain all the time. On good days it’s excruciating; on bad days it’s worse. All that I am is all gone. FMySCI.

13-06-09(9:49:07)

Anonymous — Sat, 13 Jun 2009 16:59:47 +0000

I’m broken. I don’t work right anymore. The relationship with my spouse is not certain. Physically non-existant, we don’t even kiss anymore, I fully expect him to move on some day. If it comes to that, I’ll let him go.

Pain…..I can stub my toe and not feel a thing, yet the same foot will keep me up all night in burning pain.

B&B, I can’t say enough about knowing where all the restrooms are!

Every day normal things, they’re not easy any more! I’m sick of having to allow an hour, or more, just for a quick shower and getting dressed! And shoes, who in the hell can wear shoes!

There’s more, but I guess I’ve vented enough for now. FMySCI.

07-06-09(5:36:30)

Anonymous — Sun, 07 Jun 2009 12:37:54 +0000

The pain! I am SO tired of my ass hurting ALL the time! Burning, tingling, aching – but can’t feel it when touched – it’s exahausting! Feels like I’ve run a marathon by the end of 5-6 hrs! WHY? FMySCI!

03-06-09(4:55:00)

Anonymous — Wed, 03 Jun 2009 12:41:15 +0000

Of all the things I can feel, I can feel my arthritic hip and sore back. This sucks, nothing but burning below my waist, an extremely painful hip and and extremely sore back from being on bed rest for six months now because of a stupid sore which keeps going from getting better to getting worse. This pain is really pushing me to the edge, especially when it’s d*** near impossible to get a comfortable position. To top all that off, the only friends I have are the people I paid to come in and help me out. Just about nine years of being hurt and I haven’t accomplished anything. I feel like the biggest loser. FMySCI.

02-06-09(17:06:59)

Anonymous — Tue, 02 Jun 2009 21:12:43 +0000

Not sure what to say. I’m almost 6yrs post and for me it was easier in the beginning. Since my accident, I’ve needed a baclofen pump, had 3 bladder infections so bad that I had to be hospitalized, experiencing chronic pain in my back that the narcotics barely touch, and to top it all off I just tore the rotator cuff in my shoulder. Right now I’m fighting with my insurance co. because I’m trying to get a spinal cord stimulator to help ease the pain but insurance doesn’t want to pay for it. May all insurance companies burn in hell. Their objective is to deny everything. That’s how they make money. I guess I found my voice. FMySCI.

02-06-09(16:39:49)

Anonymous — Tue, 02 Jun 2009 20:44:57 +0000

I hate pain, I live with pain, I take pills, they help sometimes… yet sometimes, like now, they don’t and it just hurts. Intractable pain, it doesn’t matter what I do or how I lie it is still as bad. I just thank whatever that the pain does subside to uncomfortableness eventually. I just wish I didn’t have to screw my head up with so many drugs to make that happen. Hoping tomorrow is a better day. FMySCI.