FMySCI - because spinal cord injury sucks. » Loss of Independence

17-01-10(22:50:09)

Anonymous — Sun, 17 Jan 2010 22:54:54 +0000

Fuck being 24 and having to wear a legbag just so I can go out with friends to the bars that only occasionally ever have a bathroom I can actually get into. Fuck having to answer questions about “how it works” to girls. Fuck waking up in a pile of beer shits cause something I ate yesterday decided not to agree with me. Fuck people standing in the way and then having the audacity to tell me off when I nudged his shoulder asking him to move. FMySCI.

21-12-09(19:34:36)

Anonymous — Tue, 22 Dec 2009 12:10:19 +0000

I hate “pseudo disabled” people who are just fat, or lazy, that use up all the handicap parking spots. i hate that my city has the worst sidewalks and nothing is accessible. i hate being in pain every hour of every day. i hate cathing, and using “digital stimulation” to shit. I hate that everyone assumes you can piss and shit the same way you always did. I hate that random girls ask me if I can get “hard”, and they assume I can still cum. I hate that pre-sci my legs were my life ( a friend once asked me pre-sci, “what is one body part i couldnt live without” and i said, “i’d kill myself if i couldn’t walk”), and now, compared to everything else i have to live with, I wouldn’t mind being in a wheelchair if I didn’t have all these other issues. FMySCI.

18-12-09(6:51:36)

Anonymous — Fri, 18 Dec 2009 12:09:14 +0000

i hate that nothing’s accessible in my $#@@# country… not even my mom’s house so i can’t go up there unless i walk… and i can’t do that right now… can’t wear my freaking leg without hurting myself even more… even the sports association for the disabled here (they call themself “Challenges”) don’t know crap about accessibility. oh yea, FMySCI and my AKA.

09-12-09(17:32:58)

Anonymous — Thu, 10 Dec 2009 17:24:13 +0000

Pissed all over myself twice today. Could be UTI, could be a new med. Either way results will take 3 days, in which case I will have spent another weekend soaking the bed 3 times a night and changing clothes twice a day (if someone is here to help) and if the f’in hospital lab decides to send my results to the doctor. So far, I’ve been sitting piss for the past 4 hours and have had to emergency cath twice, to almost no avail. Now, I can get a bed bath tonight, but the shower is pending because my boyfriend is working late and Medicaid doesn’t find it necessary that I have a transfer shower bench in which the nurses can hoyer me in and out. Or is it also the fault of the company for making such a quality chair and charging $4,000 for it. FMySCI.

12-07-09(15:02:34)

Anonymous — Mon, 13 Jul 2009 11:42:42 +0000

I am so sick of wearing diapers i am a 21yr old women wearing diapers!!! I never imagined in my worst nightmare that i would be so young and full of life stuck in a chair wearing diapers and praying i dont have an “accident” all over myself. I was with a buddy of mine and i had a huge “accident” surprise, surprise and he doesnt know about my uncontrolable bowels. So i transfer out and look down and theres “leftovers” on his seat…OMG i hate my life sometimes!!! Why cant i be normal why couldnt this have happened to someone else ive always been a nice caring person and this has just made me more bitter towards myself….FmySCI.

04-07-09(15:35:31)

Anonymous — Sun, 05 Jul 2009 17:02:37 +0000

I am sick to death of worsening pains, paralysis, dependence, lack of balance, and all the other shit that goes with quadhood. It’s almost three decades of this crap. I want it to end. I pray every night to not wake up – I used to pray for improvement and better coping. FMySCI.

29-06-09(20:19:28)

Anonymous — Tue, 30 Jun 2009 03:59:43 +0000

I had to bypass a ball game on a beautiful summer eve b/c of my caregiver’s schedule… FMySCI.

20-06-09(16:07:50)

Anonymous — Sat, 20 Jun 2009 20:55:16 +0000

F*** my SCI. I am soooo tired of living with it. People that patronize you constantly. Always having to ask for help. People that think you’re too picky because you like things the way you like them WTF. Living around a schedule of times your carers can come. I want my freedom and my life back! FMySCI.

15-06-09(6:13:22)

Anonymous — Mon, 15 Jun 2009 14:05:18 +0000

I’m tired of my parents referring to me like I have a disease. My sisters never visit, because it’s torture for them to help me get into my chair. I’m sick of everyone saying I’m bitchy/picky/needy cuz’ I like things done a certain way. Pain. Every minute of every day, the pain never goes away. FMySCI.

I’m not living like this anymore. Started school, started therapy, started looking for a job… FMySCI!!!

Don’t let the turkeys get you down!!!

04-06-09(23:05:56)

Anonymous — Fri, 05 Jun 2009 04:42:53 +0000

So I’m in Kmart, happily shopping away in the health and beauty section, when my left tire blows out. Sounds just like a gun shot went off, followed by the sound of the people in all the aisles in that area hitting the floor! Not only is it embarrassing as hell to have to announce that it’s me that caused the panic, I then have to sit there and wait for my husband to drive home to get my backup chair and bring it back, because this store doesn’t offer courtesy wheelchairs or scooters for their crip customers that could have been used to get me to the car. FMySCI.