FMySCI - because spinal cord injury sucks. » Everyday Frustration

21-12-09(19:34:36)

Anonymous — Tue, 22 Dec 2009 12:10:19 +0000

I hate “pseudo disabled” people who are just fat, or lazy, that use up all the handicap parking spots. i hate that my city has the worst sidewalks and nothing is accessible. i hate being in pain every hour of every day. i hate cathing, and using “digital stimulation” to shit. I hate that everyone assumes you can piss and shit the same way you always did. I hate that random girls ask me if I can get “hard”, and they assume I can still cum. I hate that pre-sci my legs were my life ( a friend once asked me pre-sci, “what is one body part i couldnt live without” and i said, “i’d kill myself if i couldn’t walk”), and now, compared to everything else i have to live with, I wouldn’t mind being in a wheelchair if I didn’t have all these other issues. FMySCI.

11-12-09(11:53:34)

Anonymous — Fri, 11 Dec 2009 19:44:17 +0000

Had 2 weeks to go to outpatient rehab, be released from home health, so I could get to some weight bearing equipment under my belt, and I get my normal range of motion from my normal aide, and we have a loud snap!!! breaking my femur in my right leg, setting my recovery back another 3 months! I sat in the hospital for a week, and a half, with a bunch of nurses who knew nothing of spinal injuries, or bowel programs, or pressure relief for that matter, just to be released and sent home for the bone to heal on its own…….transferring is SSOO much better with a broken leg!! FMySCI!!

09-12-09(17:32:58)

Anonymous — Thu, 10 Dec 2009 17:24:13 +0000

Pissed all over myself twice today. Could be UTI, could be a new med. Either way results will take 3 days, in which case I will have spent another weekend soaking the bed 3 times a night and changing clothes twice a day (if someone is here to help) and if the f’in hospital lab decides to send my results to the doctor. So far, I’ve been sitting piss for the past 4 hours and have had to emergency cath twice, to almost no avail. Now, I can get a bed bath tonight, but the shower is pending because my boyfriend is working late and Medicaid doesn’t find it necessary that I have a transfer shower bench in which the nurses can hoyer me in and out. Or is it also the fault of the company for making such a quality chair and charging $4,000 for it. FMySCI.

05-11-09(19:44:54)

Anonymous — Fri, 06 Nov 2009 14:26:44 +0000

I just got a call and got uninvited to a Lake of the Ozarks trip that I’ve gone on for about 4 or 5 years. I had my SCI last march and all of a sudden it’s too “hard” to be around me. It would make them nervous wrecks if they had to worry about me falling or not being able to get up the steps, etc.. into the lake house. So I get to see all of my friends go without me to the funnest thing that I’ve gotten to experience in my 46 years. FmySCI!!!!!

12-09-09(4:46:12)

Anonymous — Sat, 12 Sep 2009 12:53:56 +0000

I hate transfering in and out of the car… it so routine but takes forever! Wish I could walk again, it sucks rolling around. FMySCI.

31-08-09(14:48:32)

Anonymous — Tue, 01 Sep 2009 02:21:08 +0000

I am soaking wet because some fat woman on a scooter with a temporary handicapped parking placard took the last handicapped spot at Target and we had a huge thunderstorm blow in while I was getting into my chair! I realize its difficult to walk because of your weight but that is probably part of your problem, I cant walk! So I got to freeze while I shopped in my wet clothes, I didn’t realize I was going to be in a wet t shirt contest or I would have worn a bra…FMySCI

06-08-09(21:42:30)

Anonymous — Fri, 07 Aug 2009 13:46:37 +0000

FMySCI… I hate feeling hot then cold, chills and goosebumps… My body is never happy with the temperature. To make things worse, when I finally do cool after being too hot I have to pee suddenly, and pray that my cathing equipment is close by. Able-bodied people think all we have to worry about is not being able to walk. I wish.

FMySCI.

03-08-09(5:20:33)

Anonymous — Mon, 03 Aug 2009 11:58:08 +0000

I hate that my balance sucks and I do a great weeble impression. I hate the effort it takes to get back into my chair when I fall out. I hate the humiliation. I hate the pain, the feeling of a thousand electric shocks just as I am about to drop off to sleep. I hate that I haven’t had a good nights sleep for over 2 years. I hate that I can’t be spontaneous, everything I do must planned. I hate forward planning. I hate how much disability costs. I hate the pitying looks I get from people, the stares, the questions. I hate that I can no longer do the job I loved. I hate my bladder & my bowels, the time and effort spent on making sure they behave. I hate the frustration, that I still burst into tears over “stupid” things. FMySCI.

25-07-09(18:04:06)

Anonymous — Fri, 31 Jul 2009 13:29:47 +0000

FMySCI…. I just want to be able to jump in my car and go…….. without having to rely on anyone else. Just a walk in the woods or to my favorite fishing hole.

c6, 5 years aug 2

24-07-09(12:35:44)

Anonymous — Fri, 24 Jul 2009 18:32:24 +0000

My Nana died and travelling with a SCI is so complicated that I won’t be going to her funeral. Besides the only places I’d be able to go is the funeral because all my aunts houses etc. are inaccessible. FMySCI.