FMySCI - because spinal cord injury sucks. » Bowel & Bladder

17-01-10(22:50:09)

Anonymous — Sun, 17 Jan 2010 22:54:54 +0000

Fuck being 24 and having to wear a legbag just so I can go out with friends to the bars that only occasionally ever have a bathroom I can actually get into. Fuck having to answer questions about “how it works” to girls. Fuck waking up in a pile of beer shits cause something I ate yesterday decided not to agree with me. Fuck people standing in the way and then having the audacity to tell me off when I nudged his shoulder asking him to move. FMySCI.

28-12-09(2:46:47)

Anonymous — Mon, 28 Dec 2009 18:23:58 +0000

You know you’ve been SCI’d way too long when you don’t use the hard vibration setting on your shower wand to pleasure yourself. You use it to blow the shit off the seat in the shower…..sigh……… FMySCI.

21-12-09(19:34:36)

Anonymous — Tue, 22 Dec 2009 12:10:19 +0000

I hate “pseudo disabled” people who are just fat, or lazy, that use up all the handicap parking spots. i hate that my city has the worst sidewalks and nothing is accessible. i hate being in pain every hour of every day. i hate cathing, and using “digital stimulation” to shit. I hate that everyone assumes you can piss and shit the same way you always did. I hate that random girls ask me if I can get “hard”, and they assume I can still cum. I hate that pre-sci my legs were my life ( a friend once asked me pre-sci, “what is one body part i couldnt live without” and i said, “i’d kill myself if i couldn’t walk”), and now, compared to everything else i have to live with, I wouldn’t mind being in a wheelchair if I didn’t have all these other issues. FMySCI.

09-12-09(17:32:58)

Anonymous — Thu, 10 Dec 2009 17:24:13 +0000

Pissed all over myself twice today. Could be UTI, could be a new med. Either way results will take 3 days, in which case I will have spent another weekend soaking the bed 3 times a night and changing clothes twice a day (if someone is here to help) and if the f’in hospital lab decides to send my results to the doctor. So far, I’ve been sitting piss for the past 4 hours and have had to emergency cath twice, to almost no avail. Now, I can get a bed bath tonight, but the shower is pending because my boyfriend is working late and Medicaid doesn’t find it necessary that I have a transfer shower bench in which the nurses can hoyer me in and out. Or is it also the fault of the company for making such a quality chair and charging $4,000 for it. FMySCI.

06-08-09(21:42:30)

Anonymous — Fri, 07 Aug 2009 13:46:37 +0000

FMySCI… I hate feeling hot then cold, chills and goosebumps… My body is never happy with the temperature. To make things worse, when I finally do cool after being too hot I have to pee suddenly, and pray that my cathing equipment is close by. Able-bodied people think all we have to worry about is not being able to walk. I wish.

FMySCI.

03-08-09(5:20:33)

Anonymous — Mon, 03 Aug 2009 11:58:08 +0000

I hate that my balance sucks and I do a great weeble impression. I hate the effort it takes to get back into my chair when I fall out. I hate the humiliation. I hate the pain, the feeling of a thousand electric shocks just as I am about to drop off to sleep. I hate that I haven’t had a good nights sleep for over 2 years. I hate that I can’t be spontaneous, everything I do must planned. I hate forward planning. I hate how much disability costs. I hate the pitying looks I get from people, the stares, the questions. I hate that I can no longer do the job I loved. I hate my bladder & my bowels, the time and effort spent on making sure they behave. I hate the frustration, that I still burst into tears over “stupid” things. FMySCI.

30-07-09(16:54:16)

Anonymous — Fri, 31 Jul 2009 13:30:50 +0000

I am sick of sticking my finger up my booty hole. I am 19 years old and I have to freaking cath every 3 hours now because its 110 degrees in seattle (seriously) so i have to drink more water. My mom (who is a nurse) keeps telling me its the weather why i cant poop (cuz since my injury, i can poop on my own 95 percent of the time) but its cuz she is cut down on my stool softners and my laxitives because shes worried about me getting addicted to them. FMySCI!!!!!! GRRRR

14-07-09(3:08:59)

Anonymous — Tue, 14 Jul 2009 11:36:07 +0000

I’ve exhausted my list of “Fun things to do if you’re single and alone.” I think it’s “awesome” that the pool of guys I get to choose from are either unemployed, creepy, or just plain boring. I “love” that I never get to shop for the perfect butt jeans. I especially dig how flattering most dresses are for my She-Man figure with my disproportionately huge arms and skinny legs. Yup. Just call me SuperHot. Nothing’s more fun than mopping up my own pee after my bladder decides to play the good ol’ “Guess if I’m going to be bitchy and spastic or not today” while I’m already running late to work. F***MySci. I’m sick of this life.

12-07-09(15:02:34)

Anonymous — Mon, 13 Jul 2009 11:42:42 +0000

I am so sick of wearing diapers i am a 21yr old women wearing diapers!!! I never imagined in my worst nightmare that i would be so young and full of life stuck in a chair wearing diapers and praying i dont have an “accident” all over myself. I was with a buddy of mine and i had a huge “accident” surprise, surprise and he doesnt know about my uncontrolable bowels. So i transfer out and look down and theres “leftovers” on his seat…OMG i hate my life sometimes!!! Why cant i be normal why couldnt this have happened to someone else ive always been a nice caring person and this has just made me more bitter towards myself….FmySCI.

07-07-09(1:05:11)

Anonymous — Tue, 07 Jul 2009 23:19:48 +0000

I’m so tired of Bowel Program Roulette. What will the poop be like today – hard, dry, little rabbit pellets that take an hour to dig out and leave my ass swollen and sore, or shit so soft that it’s barely formed and causes a big, disgusting, smelly mess that sticks to your glove when you dig stim, trying (in vain) to push it out? Did I eat enough fiber/take enough Colace/drink enough water today to risk having a banana or some cheese? Did I get everything out? How much longer ’til the roids get unmanageable? FMy Bowels and FMySCI.